Showing posts with label Kristen. Show all posts
Showing posts with label Kristen. Show all posts

Tuesday, September 20, 2011

Thankful for a limited vocabulary.

Today I came across a list of words that I am thankful that I not only can't pronounce, but that I have no idea what they mean. I was visiting "CarePages" because my husband's aunt just found out that her cancer is back and it's a pretty grim prognosis. She created a page there to share her journey and for her friends and family to stay in touch and offer support. The pages are set up with keywords so you can find other people who are going through similar journeys and gain/offer support through their pages. After visiting Karen's page, I decided I'd do a quick search for Trisomy 18. I know there are LOTS of sites out there just for T-18 families, and I have kinda steered clear of them after I got pregnant with Ashley, just not wanting to "go there". But I did the search anyway and came across this particular mom's profile. Her son didn't have full Trisomy 18 like Kristen, but it still made me realize that could have been me.
My son Hunter has tetralogy of fallot and just had it repaired on 11/18/2008.
Hunter has had a lot of surgeries including cleft palate repair, nissen fundoplication twice, hernia repair, ureter reimplant (kidney), mandibular distraction, mastoid surgery, and before the heart repair he had a right BT shunt.
So on the days when I am sad and bitter that I only got 64 hours with Kristen, I need to remind myself that any more time than that would have also come with a whole new vocabulary. These kinds of conditions and surgeries are just the way of life for many Trisomy families. Kristen had a number of hard to pronounce conditions herself, many of them I never did ever know, because it was obvious pretty early on that those conditions in and of themselves, weren't really going to matter in the long run. (Although that idiot cardiologist at St. Joe's who tried to explain heart abnormalities to a completely delirious and drugged up Momma sure was proud of himself and his vocabulary!)
But in the midst of my own "issues" that I have in dealing with all that surrounds Kristen's time here, I can be thankful that my limited time with my baby also came with it the blessing of a limited vocabulary.

Tuesday, September 14, 2010

I made it.

I wrote this on Labor Day and thought I'd come back and finish it when I was able to collect my thoughts better. Well, it's been over a week and they're no more collected than when I started writing so I'm just gonna hit publish and post the darn thing!!

I made it.

I made it through Labor Day Weekend.

Labor Day Weekend will always be Kristen's weekend to me. Sure there are her "dates" of Aug 29 & Sept 1. But I will always remember and refer to it as Labor Day weekend 2008.

We went to the hospital full of excitement and anticipation on Friday morning and we came home utterly devastated with empty arms Monday afternoon. Because it was a holiday weekend, our little corner of the NICU was pretty much all ours with only 1 or 2 visitors for other babies the whole time we were there. I was only in the same building as her (and coherent!) for about 20 hours of the precious 64 she was given, but I am so thankful I got what I did. I remember that weekend so vividly, yet sometimes it seems like it was all a bad dream. (I just re-read my blog post about that first and last morning with Kristen, ugh. more like a nightmare than a dream!)

But its hard to believe it's already been two years. I wonder if I am where I'm "supposed to be" by the two year mark. I'm reminded there is no timeline, although, our culture is really bad at showing it. Sometimes I'm glad that no one remembers her, or at least doesn't mention to me that they remember her, because it makes it easier for me when I want to pretend it never happened. There are days like that. When I feel like I have some "secret" about who I really am but I just want to be like all the other moms. But I'm not. I'm reminded that everytime I see a happy birth anouncement "baby and mom are doing great!" Although I am honestly and truly happy for them, I can't help but be a little jealous. No, a lot jealous. I'll never get the chance to send out that happy news.

So although there's no "timeline" I wonder where I'm supposed to be. I know of a few people that make huge deals out of their deceased baby's birthday. Nothing wrong with that. But I guess it's just not me. I wouldn't have anyone to make it a big deal with, I wouldn't want to make it weird for anyone I suppose. When I shared with my mom a few weeks before this weekend that I didn't know what or how I wanted to observe her birthday she said something along the lines of "well, you can always celebrate her in your heart." At first I wanted to roll my eyes and say "whatever!" but now that the weekend has passed, all I really did was remember her in my heart. Feels kinda lame, like I'm not doing justice to what she really means to me. But then I remember her every day in my own way and making a big deal out of it, well, I guess I worry it would weird people out. I know I shouldn't care what other people think, but I want to be normal, even though I know I'm not. Not in that way, anyway.

So, I made it. Even if "making it" meant ignoring it, hoping it wouldn't hurt, holding my breath for the significance of the weekend to go away, yet all the time wishing someone knew how important this weekend was to me. So now back to the business and distraction of every day life....and pretending to be normal.

Sunday, August 29, 2010

Cupcakes for Kristen

On our way home from church today I asked Katelynn what she thought we should do to remember Kristen on her birthday. "Let's make cupcakes" was her first answer. We had already talked about that, so I said "Sure! What else?" "And candles too." "Okay. Anything else we can do to remember her?" She thinks for a minute and then says "Happy Birthday presents!" To which I replied, "Oh Honey, Kristen isn't here to open presents." She quickly answers enthusiastically, "That's okay, I can open her presents for her!"
So I of course had to ask what kind of presents we should get. She went through a whole list of presents sounding much like a shopping list for her! "a new skirt with leggin's, a shirt, some tights, and maybe some socks." Then out of no where she added that we should buy sippy cups. I think cupcakes will do. :)

Thursday, August 12, 2010

I just do.

I miss Kristen tonight. I've had a few times like these lately where I have flashbacks and am kinda taken by surprise by the power of my memories and the overwhelming emotion associated with them. Just remembering that last morning/day with her and doing my best to "stay present" in the midst of everything. I remember feeling so intensely and allowing myself to emote in anyway I wanted to. There's freedom and amazing physical release in sobbing. That was the first time I think I ever really did it - for real.
I often wonder if I try not to remember out of fear that it will take away the joy from having Ashely. But instead I'm just reminded. Reminded how awful that was and how wonderful this is. I'm reminded to be thankful even on days like today when Ashley seemed to cry for most of the day. Oh what I would have given to hear Kristen cry. But instead I have memories of her sweet little snoring sounds and her little noises she'd make.
I wish I had more positive memories of her. I do have some, but most of them are overshadowed by the pain of the whole experience. I want to be able to look back and smile - which I do, sometimes. But when I let myself really remember, it hurts. I guess the thoughts of Kristen make me happy - she was and always will be my baby. But its the memories that are harder to deal with.
I hear parents all the time say when they're expecting their 2nd child "how will I be able to love another one as much as I love my first?" I struggle with wondering how I will be able to still miss and grieve my 2nd and still enjoy and love my 3rd. But the answer is the same for both questions "You just do."
I am so in love with Ashley (and Katelynn) and I so deeply miss Kristen. I just do.

Sunday, June 27, 2010

Post #200 - We're all smiles!!

Hard to believe there are 200 posts on this blog! I know it's not much compared to some blogs, but considering the life that is contained in these "pages", I'd say it deserves a photo of one of Ashley's first smiles! Okay, two photos! Nama Kathy was getting her to grin and then along comes Big Sister and out comes the smile!

Thank you to all our "followers" that have been keeping tabs on us via our blog. This blog started out as a way to share photos with family, then it turned into a way to keep everyone updated on what was going on with Kristen. It then became an outlet for me to journal the crooked path of healing I/we were being lead on. Now it has once again become the place for us to share life from inside the Balcom home - as we're able! Blogging tends to take the back seat to screaming babies and needy preschoolers!!Life is still going on, some days its easier to blog than others, but I hope to continue chronicling life here. The good and the not-so-good. It's all a gift just the same.

Thursday, June 3, 2010

Daddy and his three princesses

I just couldn't wait to post this - I don't have the rest of them, but here's a sneak peak at our photo shoot from last week. Don't I have a beautiful family!!  And doesn't Sarah do an amazing job!! I wanted a way to incorporate Kristen into our family photos without it being "weird." I think this came out beautifully!!
Thank you Sarah!! http://www.sarahdawnphotography.com/

Daddy and his three princesses :)

Saturday, May 1, 2010

The devil's in the details

Who would have thought simply cutting a tag off a piece of baby clothing or opening up a bag of diapers would be such a hard thing to do!? (Almost as hard as finally deciding to have a baby shower!) I highly doubt (and hope!) any first-time mom has ever had to experience this. Oh, the bliss of ignorance. And I mean that in a good way!

While Kevin worked on the patio cover today I worked on the baby center. I'd say the baby's room, but it's kind of a multi-purpose room really. It will have a twin bed, some of Katelynn's larger toys, some of our things simply for storage, and the changing table with all her immediate needs, but she'll be sleeping in either our room or Katelynn's. (I think I posted before about Katelynn not liking the idea of Ashley not sleeping in her room with her, so that helped us decide if they'd have separate rooms or not!) So the "spare room" has turned into the baby/guest/toy room. :)

We've turned an old desk that I refinished in college into a changing table and placed it in the closet - a perfect fit! (there's no doors) Then last night Kevin installed a shelving system to create the perfect baby center. So today, it was up to me to "get it ready", stocking it with diapers/wipes (which I've been stockpiling with all my crazy coupon sales!), burp rags, clothes, blankets, etc, etc.

As I "nested", I found myself faced with the decision similar to when I had to decline or accept my friend's offer to give Ashley a baby shower. You see, there are a number of things that I didn't end up doing before Kristen was born, that are normally "before baby comes home" kind of things, that I think God spared me from doing, because of what it would have meant to come home to. I didn't pre-wash all her clothes. I didn't open up all her diapers and get them all lined up on her changing table. I didn't even go out and buy nursing bras! Yes, we did set up the crib and get a few things ready, but for some reason, maybe 'cuz she was our 2nd, I didn't get all wrapped up in preparing for her homecoming. Maybe I sensed something, I'll never know, but I'll count it as a blessing.  A blessing in that circumstance, but a new dilemma in this one.

So as I unpacked the "baby boxes" I came across a number of things that we kept from Kristen but that didn't necessarily have major Kristen memories attached to them. There are a few items that will forever be Kristen's and those are packed away or set aside. But there were a number of really cute outfits from her baby shower and bags of diapers that we hadn't given away because we knew we'd be able to use them in the future. So as I unpacked things, I had to decide if I was going to take the tags off of things and pre-wash them; was I going to open up the packages of diapers and get them ready for Ashley's big homecoming? Then all the "what-if's" started. What if she doesn't come home? I didn't get this prepared for Kristen and it was horrible coming home to the few things I did get ready. I can always pre-wash things when she comes home I thought....with the when quickly turning to an IF.....

That's when I'd had enough and I ripped open the bag of diapers and snipped the tags!!  I'm going to go out and get her her own hamper, I'm going to unpack all the clothes and hang them up, I'm going to enjoy celebrating her at her baby shower. I won't let the devil steal my joy by hiding in the details. And I won't let my lack of ignorance rob me of my bliss!!  I have a number of people in my life that you can tell don't want to get too excited about a new baby. They have reservations when they ask how my appointments are going, have I had any new tests, is everything okay with the baby, etc. Even though I have explained that this pregnancy is just as normal as Katelynn's you can tell they don't want to (or maybe just won't) believe it until they meet Ashley. Makes me wonder sometimes if I'll have to prove that I'm capable of "producing a healthy baby" before the fears can be subsided. Sure I have fears too, but Ashley shouldn't be shadowed by them!

Which is why I love meeting people that have no idea about Kristen! I used to wish more people knew about her, but now I love talking to those that don't because of the excitement people tend to have around a pregnant woman. The look of joyful anticipation is refreshing. They want to know if it's my first, if its a boy or a girl, not if it's healthy, as if there'd be any reason to think otherwise. They want to know when the due date is and how I've been feeling, not when the next test is going to be and what the doctors are saying.

So I guess until I have a screaming little newborn in my arms, I'll keep looking forward and know that my hope comes not from my "positive thinking" which will always fail me, but from a God that will not disappoint. My hope has been deferred and I can't wait until it is redeemed!!

Now off to pre-wash some baby clothes! :)

Sunday, January 17, 2010

Out of the Rubble (part 2)

(to read Part 1 first, click here)
I was two and a half years old when Mt. St. Helen's blew. I don't remember any of it but I've been told stories and have read enough to know how impacting it was. I've been to the National Park to see the aftermath now 30 years later and there's no question something HUGE happened there. There are still "mountains" of ash along I-5, most of our parents still have jars of ash stuck away somewhere, and even my promise ring I got as a teenager was an emerald made from Mt. St. Helen's ash. But I don't have to have personal memories of wearing face masks or having the day sky turn dark to know how powerful it was or the kind of devastation it left in its wake. No one had to instill a sense of fear in me to understand the power God has in His creation which would keep me away from volcanoes. And you know what? I live in the shadow of Mt. Rainier (even enjoy being ON the mountain) and rarely think twice about it being a volcano! It's beautiful to me - not scary. And Mt. St. Helen's is now a beautiful monument not a graveyard or wasteland.

Last night (well, early this morning!) I blogged about how God was offering to start removing the rubble and debris that was left from the loss of Kristen so that this new baby would have the light and life it needed to enter this world. I thankfully was able to go back to sleep for 2 hours (most of my blogging happens in the wee hours of the morning when I can't sleep so being able to go back to sleep is SOOO nice!) and in that little nap I had a dream. Lately my dreams haven't been all that encouraging - usually they're about the baby and I either forget that I have one to care for and take with me, forget that I need to feed or change her, or something along those lines. (mainly because I never got to do those things with Kristen because there were nurses and doctors doing that for me.) But in this dream I was holding the baby and waving to Kevin through a big window to bring in Katelynn to meet her. But Katelynn didn't know or understand what was going on because we had kept her from the whole experience "just in case". That's when I realized that it's not just the baby or me & Kevin that God wants to remove the rubble from, but Katelynn too.

We involved Katelynn in every aspect of preparation with Kristen. She was excited! We got clothes out, she came to the baby shower, she helped get the crib ready in her room, we even watch movies and read books about a new baby coming home. So when the baby didn't come home, she was a little confused since she saw her at the hospital. She actually just thought the baby went back into mommy's tummy! But she was 2 and 1/2 and I didn't really expect her to remember too much. We did explain that Baby Kristen went to heaven but the comprehension of that has changed through out the months. So when I woke up from this dream I realized that out of my own self-preservation and fear of the unknown, I was almost robbing Katelynn of that anticipation that she got to experience with Kristen. By not wanting to set the crib up yet, get clothes out or even have a baby shower, I was taking away the elements of anticipation not only for myself (almost intentionally) but for Katelynn as well. She doesn't know that bad things can happen to babies, so why shouldn't waiting for this baby be just as exciting as waiting for Kristen? Just like I don't remember Mt. St. Helen's blowing but I love looking at and living near Mt. Rainer.

As I let myself process the dream I began to realize that I was using my rubble to "protect" Katelynn from something bad happening. She'll be 4 and 1/2 when this baby is born and most likely will remember it. What do I want her to remember? That mommy's tummy got big, she went away and came home with a baby? No. I want her to anticipate and prepare for her new sister. I want her to "make room" in her life. If something bad happens, well...I guess God will have to handle that one -- AGAIN! But I want Kristen to be remembered for the good things and in appropriate ways, I don't want her memory to overshadow and prohibit life from happening. It's one thing to be tentative or have reservations about things, I know what it means to be the 1 in 5,000 to have a baby with T18. But to be scared of anticipating life for fear of death, that's not the life that Christ died for me to have. Or anyone in my family for that matter!

So like I wrote in my first rubble blog - it's up to God how He will remove the bricks and I have to trust He knows what He's doing. I'm just surprised that it's happening so fast and so noticeably! A few months ago I was fearful of doing the basic preparations for the baby. The sting was still there from taking down an empty crib, packing up gifts and putting away the matching outfits I had for the girls to wear in their fist "sibling photos". But God has been softening my heart and brick by brick giving me an anticipation for this little girl without the overshadowing "what if's". Then with the confirmation of gender and getting to really see her on the ultrasound came the realization that this little girl deserves just as much excitement and preparation for her life and entrance into this world as Katelynn and Kristen got. THEN...this dream made me realize that Katelynn should be allowed to anticipate and enjoy the excitement of this new baby too. That out of the ashes we would be able to dust off this pearl and treasure her for what and who she is - NOW. So we decided to name our little girl Ashley Megan. Although "Ashley" officially means from the meadow of the ash trees and "Megan" means little pearl, we like that she's due on Mt. St. Helen's Day (May 18th) and that God is giving us beauty for ashes.

I've been singing Sara Grove's song in my head since I posted it: It's been a hard year, I'm climbing out of the rubble, the lessons are hard, healing changes are subtle. And I feel you here, and you're picking up the pieces, Forever faithful. It seemed out of my hands, a bad situation, but You are able. And in Your hands the pain and hurt, Look less like scars and more like: Character.

Rubble (part 1)

If you had told me a year ago that I would be posting this I'd say you were crazy. But here I am. Last night at church we prayed for Haiti, as I'm sure (and hope) most churches will do during their services this weekend. But there was more to it. He said as he was praying over the week, having his heart broken for the devastation that has happened and continues to happen to this already "down and out" country, the Lord asked him (and I'm paraphrasing, sorry Roger!) "How are they so different than the people in your own city? Because the rubble and debris is on the outside in Haiti, you see it. But there are people dying and being buried under rubble in their lives everyday. That is the rubble I want to remove, to bring life back to them, not despair under the weight of their circumstances."

Then Roger invited us to put our hands on our hearts and pray together, asking God, inviting God, to remove the rubble in our lives that our circumstances had buried us with. I don't remember all of what we prayed but something changed in me. I realized as we prayed that my hands were no longer above my heart but had slid down to just above my belly. As we prayed over the areas in our lives that we needed a divine rescuing, I got the picture of God setting aside the rubble that is still left from our tragedy with Kristen, almost sweeping off my tummy, to let the new baby (and a new mommy) emerge unhindered by the circumstances that preceded her. He wasn't just throwing the pieces away. He was carefully setting them aside, brick by brick, making a nice pile to the side, in a way saying "we'll come back to that later, but for now, there's life to be had and this rubble is in the way."

Now, don't get me wrong. Kristen is by no means rubble!! But the aftermath that a tragic labor/birth experience and unexpected loss leave is no dust bunny under the sofa either. It's hard to get excited about having a baby like I did with Katelynn and Kristen when you know that bad things happen. Having a baby is more than just gift registries and diapers. I'll admit I haven't wanted to completely "buy in" to the idea that we're having a baby until she's home in my arms. This last week I did a bit more with the ultrasound and finding out she's a girl. But during that prayer time it was like God was wanting to remove the debris of that experience, so that I could have a renewed experience. I've been thinking of this quite a bit and asking a lot of "HOW" questions. How do I do that? How do I not feel like I'm leaving Kristen behind or ignoring who she was and what happened? I don't want people to think I've "moved on" - you never really do. And it keeps coming back to "that's not your responsibility. That's God's specialty."

I watched on the news the people in Haiti clearing out rubble literally brick by brick. And 4.5 years later they're still clearing out and rebuilding after Katrina. Reconstruction doesn't happen overnight. But first things first - clear the way for life to happen. Not sure how God does that, but I know He's able. Below are some lyrics from a songwriting who always seems to speak right to my soul and where I'm at. There are a few lines in the song that I couldn't have written any better and speak to what God does with our rubble. I will always have an external scar from Kristen but I look forward to what God does with the internal ones.

Less Like Scars
by Sara Groves

It's been a hard year
But I'm climbing out of the rubble
These lessons are hard
Healing changes are subtle
But every day it's

Less like tearing, more like building
Less like captive, more like willing
Less like breakdown, more like surrender
Less like haunting, more like remember

And I feel you here
And you're picking up the pieces
Forever faithful
It seemed out of my hands, a bad situation
But you are able
And in your hands the pain and hurt

Look less like scars and more like
Character

Less like a prison, more like my room
It's less like a casket, more like a womb
Less like dying, more like transcending
Less like fear, less like an ending

And I feel you here
And you're picking up the pieces
Forever faithful
It seemed out of my hands, a bad situation
But you are able
And in your hands the pain and hurt
Look less like scars

Just a little while ago
I couldn't feel the power or the hope
I couldn't cope, I couldn't feel a thing
Just a little while back
I was desperate, broken, laid out, hoping
You would come


And I need you
And I want you here
And I feel you

And I know you're here
And you're picking up the pieces
Forever faithful
It seemed out of my hands, a bad, bad situation
But you are able

And in your hands the pain and hurt
Look less like scars
And more like
Character

Monday, December 21, 2009

Ultrasound Appointment......Healthy Baby - Ticked off Parents

Please forgive me - I just need to vent!!

We went in for our 20 week ultrasound today and needless to say we're thrilled to know our baby is healthy, but it was one of the most frustrating & disappointing appointments I've had in a long time. The tech came in (15 minutes late & me with a FULL bladder!) and said "so now what was the situation with your last baby?" I replied that she had Trisomy 18 to which she asked "oh, how did she do? everything come out okay and she survived?" If you know that she existed wouldn't you know a little more to the story!!??? And what a STUPID question!!! Do you not know what T18 is????? Later I read in my chart notes online that it has written (and I quote): had integrated screen, last child with Trisomy 18 and a heart defect. Even if she didn't have the rest of the story in her notes wouldn't you think she'd either #1. find out what happened BEFORE asking. #2. have at least SOME clue what T18 even is!! #3. not ask such a definitive question. or #4. just keep her mouth shut.

I had a similar thing happen at my 6-week check up after Kristen's birth. The nurse didn't know that she had passed away (although isn't it odd to have a mom come in for her 6-week check up without a baby?) And she's going through her list of questions she has to ask and I am getting a feeling she doesn't know the outcome. That assumption is confirmed when she asks the baby's weight at birth and then if I am nursing or formula feeding. I then had to eek out the words. I don't remember what I even was able to say but it obviously took her by surprise and horror. She apologized profusely and then finished the check-in process. The midwife then came in and told me the nurse was crying and felt so horrible about what happened. I asked if it wasn't in my chart and she said it is there, they just didn't know/think to look. Since then I've asked that it be plastered throughout my medical file....apparently that hasn't happened and people are still asking STUPID questions!!

The rest of the ultrasound appointment progressively got worse. She has been doing this for 20 years so she does it all so fast we can't tell what anything is and she never stayed in one place long enough for us to see the baby move much at all.

Then when she was done she leaves and says she'll be back in 10 minutes or less. FIFTEEN MINUTES LATER she walks in with another radiologist. All I can think is -- great - we've been here and done this before! Then get this...she says "this is Dr. So and So and we just wanted to get one more quick look." I ask if something was wrong and she says "oh, everything's fine, we just wanted to take a quick look at the kidneys." Bull-sh*t everything's fine! You don't bring in a second opinion if everything is fine. I told them both that I know it's not good when they have to bring someone else in to take a look, at which the radiologist says "we don't want to do anything to worry you so we thought it's better to take a quick look now instead of having you come back in." So they look at the kidneys and then start looking at the heart. After a number of code-worded conversations I finally ask what is going on and why they're looking at the heart so much. They said it was because they weren't able to get good scans of all the heart's structures before and wanted to try again. But this time the baby has turned and its spine has shadowed its heart and they can't get a good look. The radiologist is leaning over me so I can't see the monitor or what they're looking at and finally she says it's fine and leaves the room.

Needless to say we were a little less than pleased with the visit. We were now 10 minutes late for our midwife appointment upstairs so we booked it up there and got in right away but the midwife was still 10 minutes away from seeing us! (I had called while we were waiting for the tech to return and told them we were going to be late because we were still down in our ultrasound.) I shared my concerns with the midwife and she helped us to understand where some of what happened had come from. Because of our excperience with Kristen, they wanted to be 100% sure they checked everything really well this time. And since the tech has been doing this for so long she knows when she needs a 2nd pair of eyes to look at something. That's also why she went so fast through most of it, because she's been doing this for so long it's "normal for her". Sorry - it's not normal for US!!!! You better believe I'll be contacting radiology AGAIN tomorrow to let them know how our appt went! I had to do it last time with one of Kristen's appointments too. Not only do I not appreciate being treated like an ignorantly-bliss 1st time parent who only cares about gender, but I don't like being lied to either nor do I appreciate them treating my appointment so insignificantly. They may do this 100 times a day - BUT I DON'T! This is my baby we're talking about here!! Give me 5 seconds to just look at it move for goodness sake!! Will it kill ya to have an ounce of bed-side manner!!?

So, yes the baby looks good and ultimately that is really what mattered. We still don't know gender yet, its legs were crossed - just like ALL our babies have done!! We unfortunately didn't really even get any good scan photos like we did with Katelynn. I mentioned that to our midwife too and she said that she'd do an in-office scan next time and see if we can't get a good photo of the baby AND maybe check gender. So that's one good thing that came out of that appointment.

But all in all, the baby has none of the signs that Kristen had. Our midwife even showed us comparisons of their ultrasounds (gotta love technology!) and it was amazing the difference there is between a T-18 baby and a healthy baby! Thank you Jesus!

Saturday, August 29, 2009

Has it really been a year?

Hard to believe a year has already flown by! Some moments it feels like just yesterday that we were taking a photo of the three of us just before we headed off to be induced. Yet, other moments seem like it was a lifetime away....well, I guess it really was. The external scars have healed for the most part and the internal ones still need plenty of tending to. We each do that differently, and everyday it looks a little different. But we know that God is faithful to complete the good work He has begun, it's just not on our timeline! :)

I wanted to thank everyone that has been contacting us one way or another this weekend. Whether through visits, calls, e-mails, facebook, cards or prayer, it is all appreciated. And thank you as well to those that have remembered throughout the year and have encouraged us to talk about Kristen and remind us that she's not forgotten (or nor are we and what we still feel everyday.)

We decided not to do anything "extravagant" to remember her on her first earthly birthday and her first heavenly birthday. We're planning on going to the ocean, just the three of us (and Libby!) and all of us are looking forward to that. I made the mistake of telling Katelynn we were going to the ocean for Kristen's birthday. She replied, "oh that will be so fun, and I'll hold her 'cuz she's so tiny!" I explained to her that Kristen was in Heaven now, "in the sky with God?" she asked, and I told her yes.

She has been extremely observant lately and it has been really interesting how she incorporates Kristen into her life. There is a hospital being remodeled in Puyallup and she always asks what the cranes are doing and we tell her they're building a hospital and for the most part that ends the topic. Sometimes she'll add something about how that's where babies are. Well, the other day we were driving within sight of the hospital and this was our conversation (more or less):

Out of no where she says, "hey Mommy, look there's a hospital....how come daddy cried at the hospital?"
"Well, he was sad about baby Kristen."
"Why?"
"Because she was really sick. We're sad when you get sick too."
"And she has owies?"
"Not anymore. Remember, she's in heaven with God now and doesn't have anymore owies, she's all better now."
"Oh." "Heaven up in the sky, with God?"
"Yep. Up high like the mountains." (sometimes she thinks if she jumps "high" that she'll be as high as heaven too. :) So I wanted to be sure I clarified that one!)
"And she's so cute." (that's when she makes the action of holding something the size of a quarter cupped in her hands.) "Oh Mommy! Look! There's a plane!" (If you've ever seen the movie "Up" these are total "SQUIRREL!" moments that happen with lots of things!) :)

I am so thankful for Katelynn and how it is never odd for her to talk about Kristen. We were told in the beginning when we were fearful of what to tell her, that she would ask questions according to her level of understanding and that we just need to answer her question, not give her more info that what she is asking for. It's been in the last few months that I have realized that we'll get the privilege of doing this for the rest of her life. A privilege I am honored to have! Not only do I enjoy telling Katelynn about her sister, but I love hearing Kristen's name spoken without reservation like she does.

Thank you again to everyone that reads our blog. Sorry it hasn't been updated in so long. I have tons of fun things to post here with great photos, just haven't made the time yet. I've been trying to work on my personal blog a bit and of course keep up with Facebook! :) But I hope to get more posted to our family blog soon. Until then.......
-Tara

Tuesday, July 7, 2009

Today Show Clip

Here's a clip from the Today Show that highlights one of Kristen's playmates and his family and new baby sister.

There Will Be A Day

Last October I heard a song late one night while I was driving (I still even remember where I was!) and I took a moment to listen to the words. I had heard it quite a bit but never really listened. I came home that night and instantly tried to post it to our blog but it was too new at the time and it wasn't yet available to post. I hadn't checked in a while and when I heard it again this morning I decided to try again. It's now added to our playlist which plays in shuffle mode. So it will either come on in a bit or you can just skip ahead at the bottom of our blog.
It's been amazing how God has spoken through music in new ways since last fall. What a gift we have to listen to this music freely without fear of persecution.
Here are the words to the song:

Artist: Jeremy Camp
Song: There Will Be A Day

I try to hold on to this world with everything I have
But I feel the weight of what it brings, and the hurt that tries to grab
The many trials that seem to never end, His word declares this truth,
That we will enter in this rest with wonders anew

But I hold on to this hope and the promise that He brings
That there will be a place with no more suffering

There will be a day with no more tears, no more pain, and no more fears
There will be a day when the burdens of this place, will be no more, we'll see Jesus face to face, But until that day, we'll hold on to you always

I know the journey seems so long, You feel you're walking on your own
But there has never been a step, Where you've walked out all alone

Troubled soul don't lose your heart, 'Cause joy and peace He brings
And the beauty that's in store, Outweighs the hurt of life's sting

I can't wait until that day where the very one I've lived for always will wipe away the sorrow that I've faced
To touch the scars that rescued me from a life of shame and misery, oh this is why, this is why I sing.

There will be a day with no more tears, no more pain, and no more fears
There will be a day when the burdens of this place, will be no more, we`ll see Jesus face to face

There will be a day, He'll wipe away the stains, He'll wipe away the tears, He'll wipe away the tears...there will be a day.

Thursday, June 25, 2009

A beautiful tribute

Our friend Patti Ramos posted a letter from us and some beautiful photos of Kristen on her blog: "Preparing for the journey ... not just the destination"

Wednesday, June 17, 2009

Into the Deep

At Kristen's life celebration service the "guest book" was a daily devotional book. Some days I read it, some weeks I don't. There has been one that has really stuck out to me that I have kept bookmarked.

"Put out into deep water, and let down the nets for a catch." Luke 5:4
A lot of us have limited vision. We base most of our activities and plans on what we've learned from experience and the interests, talents, and abilities we know we have. We are reluctant to get in over our heads because of the discomfort we feel in such situations. We don't like having demands placed on us that are beyond our resources.

When Jesus calls us to follow Him, He always pushes us beyond our experience and beyond our abilities. Peter had been fishing all night with no results when Jesus' instruction came to put out into deep water. All of Peter's intuition told him that the exercise would be fruitless. But Jesus doesn't call us to do the same things we've always done in the same ways we've always done them. He call us to launch out further and deeper, to places where we cannot depend on our own experience and abilities. He puts us in places where we must depend entirely on Him.

Next time you feel helpless in a situation and know you're in over your head, remember the sovereign Lord who placed you there. He has intimate knowledge of the deep. He is master over all the elements of His creation. He knows what awaits us there. He is Lord of the wind and the waves, the harvest, the loneliness, or whatever else might face us "in the deep."

The deep water can be a scary place to be. For Peter, it seemed like a pointless place to be. We are helpless there. But we cannot avoid it and be obedient to Jesus at the same time. This is the way to bear fruit in His kingdom. This is where the catch is. They way of discipleship will eventually lead us there. Jesus knows what it takes to bear fruit - and it always involves going beyond our own experience, our limited vision, and our resources. He calls us to launch out into places where we have no choice but to depend on His instructions and His power.

Monday, April 13, 2009

Back to the Balcom Blog

I thought I would blog a few thoughts that have been percolating over the last few weeks. There's a lot here, and I tried to "truncate it" but it didn't work. So here's the full post!!

(this blog entry took almost two weeks to write, you’ll see why)
I had a friend at preschool ask me a few weeks ago about the lack of updates to our blog. She said, "I've noticed you haven't updated your blog. I check it all the time and if I remember right, you once wrote that if there is a long time between postings, things are hard. Are you doing OK?" I thought to myself, Busted! I smiled and eked out something that at least confirmed her suspicion but wouldn't require me to go into any more detail; then I had to stop before my eyes flooded. It wasn't the time or place to go into more detail, but in an odd way it felt good to have her (or anyone for that matter!) notice the blog has been silent. She replied that she'll continue praying for me and thinks of me often. I thanked her and told her how much I appreciate hearing that. That was when I realized that Katelynn was fighting over a paintbrush! Good distraction!

Then last night I was thinking it probably IS time to update the blog. I haven't updated it in so long. I've meant to a couple of times. I wanted to post photos of our great adventure going to see "The Lion King" with Kevin's family, "brag" a little about Katelynn's new found skill and love for storytelling and bug hunting, have Kevin blog about his completed tattoo, there's plenty to write about. But once again it's not for a lack of content that I don't write. It's probably partly a time issue and a little bit wondering if people even read it. There's been a few instances where someone who I thought read our blog asks us about the radio contest (January/February) or had no idea about Kevin's tattoo (since October). All things that have been major topics on the blog. That's why we blog and why we shared the address with so many people was to keep them caught up.

But as I thought about it last night, I wondered where I'd start again. I realized that I personally didn't feel like I had anything "interesting" to share. In the beginning of this crazy season, blogging was a great outlet for me. I shared lots of thoughts as a way to process them and did what I could to start the healing process. Anything I felt or thought was "fair game" and I didn't feel like anyone would question what I shared because of where we were at the time. Our situation had become quite public and we were happy to share via the blog because we could share with so many people so easily. But as life got back to "normal" on the outside, it was nowhere near that on the inside and the gap between “normal” and “real” became harder to define. People would continue to ask, "how are you doing?" and I know they meant well, but I just got used to saying “OK”, an easy answer that doesn't necessarily cover up what's going on, but doesn't have to go into detail either. It wasn't getting any better (for me anyway) and I got tired of being reminded that it wasn't. I also got tired of having to catch people up on what had been written on the blog months previously. If I told them things weren’t that great, they’d respond with “Oh, why! What’s going on!!?” I wanted to reply “check the blog. It’s all there.” Not to mention Kevin would read the blog and have to ask "really? you feel that way?" So I realized I was sharing things on behalf of our "family" when in reality it was pretty much just my junk!

My daily struggles were no longer the obvious ones they were in the beginning; I can now do my own grocery shopping, make my family meals and take care of Katelynn like any other mom. But the issues now are deeper, more personal ones. So as I thought of what I wanted to blog about, I found that anything I would write today would almost sound the same as it did seven and a half months ago, but unfortunately with a little less hope and confidence than how I wrote back then. (Yes, it HAS been 7 and a half months already! Thanks Cari for remembering us on Sunday the 29th!) And in my mind everyone's already heard that stuff, it's a little old. (Second verse, same as the first!) But on the same token, it may be old on the outside, yet it's everyday on the inside. Granted some days are better than others, but it's always there. Seven months ago, even three months ago, the things I was blogging about were expected, but it felt part of a healing PROCESS. I thought it would get better as I wrote, but it didn't. I know some people would tell me (and have and still do!) to give it more time, we're ONLY 7 months into it. But I guess I'm tired of it. Tired of "managing" emotions, tired of trying to maintain a new normal for our family while still feeling the same pain and sorrow I did months ago, tired of wanting to make it sound like we're making more progress than we are. I know we are in some sense, but it doesn't "feel" like it. It is what it is.

It's funny, as I write this, I can probably name three to four people that will at some point respond that they ‘wish they had known’, ‘why hadn't we talked about it’, and felt that ‘we have been hiding what's been going on’. We weren't and aren't hiding. And there's really nothing to talk about most days. Its just part of our new normal. I'm sincerely hoping that one day it will cease to be, but until then, it is what it is.

And I guess it's those questions that have kept me from blogging. I actually like feeling like we have some sense of normal, even if it is on the outside, we need it! But then when I want to blog like I did before, honestly about what I’m still processing, I am worried of the reactions I’ll get. My counselor said a few weeks ago that our culture doesn't know how to deal with emotional situations, grief especially. We want the other person to feel better (get over their “stuff”) so we can feel better being around them. We're not okay with people grieving - we want to make it go away or pretend it’s not that bad. Maybe that’s why people chose not to read the blog, it’s just easier not to read. That’s fine with me. I’ve been told a number of times that another person’s reaction to my situation is not my responsibility. If you don’t like the tears, don’t look. If you don’t like the thoughts, don’t read them. If you don’t really want to know what’s going on, don’t ask! But don’t be surprised when a year down the road you hear or read something that might suggest life is still hard – no, it hasn’t gone away. Or don’t be surprised that Kristen’s name still brings a smile to my face and tears to my eyes, or that Katelynn loves to tell people about “my sister Baby Kristen.” This is all part of our daily life and just because we don’t make it obvious, doesn’t mean it’s not there. We have relatives that change the subject or act like they didn’t hear us when we mention Kristen’s name. I’m learning to be prepared for those situations and almost expect them. But in return I am finding outlets where I can be real with how I feel on good days and bad ones. I have gotten so used to wanting other people to be comfortable around me that I forgot exactly how I feel! I am in touch with a few people that I know have been (and are going to be) huge components in this journey. They invite and almost expect the ugly stuff to come with the good stuff, and they never make me feel uncomfortable with my tears or jumbled thoughts! I think we all need those kind of people in our lives!

So in true form, I’ve processed a lot of thoughts in this blog post. As I mentioned earlier, I like having a sense of normal family life and I think I am going to let this blog do that for me. I need a place I can post the fun family stuff, stories and photos. I will most likely find a new outlet for the “ugly stuff” which in reality is more my own than anyone else’s. That way I’m not always trying to bridge the gap that grief brings between “normal” and the “new normal” or making it sound like the whole family feels the way I do. I need a place where I don’t feel like I need to temper the hard stuff with something happy. It’s not always that easy. I may come back after a while and blog some of that here. But until then, this will once again become “The Balcom Family Blog” sharing the daily happenings of the Balcom Family. As for my “other stuff”……well, I’m sure that will find a great new place to flourish!

Sunday, March 1, 2009

Three missing days

Kind of a weird day - it's like three days in history that have been repeated for the last 5 months simply disappeared. Today would have been Kristen's 6 month birthday - but instead it's March 1st, Kristen's 6 month birthday of being born into heaven. I had been doing really well during the first part of the month but somewhere over the last few weeks the lack of dealing with emotion (and not really being aware that was what I was doing) started to catch up with me. I have had a few friends here and there make comments that "brought me back" and reminded me I'm not alone. I wanted to share a few notes they have sent.

"something caught my heart... so I'm sorry if I say this wrong.. but I don't have 3 times more kids. You will always be the mother of 2 or more if you have more... but in my heart, your baby girl will always be a part of you. She's a piece of your daily living - you go on.. being a mom of two! And being a "Stay at home mom" is soo much harder and amazing then any other job! Be proud! You do more then you know! And I'm sure your family knows that with all the love! And anytime you want to speak about your babe in heaven... speak free with me. I have not forgotten baby Kristen."

"I just wanted to let you know I am sad there isn't a Feb 29th so Kristen can have her full 6 month birthday. But I guess it's fitting that since she isn't with us that the 29th should be missing as well.
"
(It makes me feel kinda bad for those born on a Leap Year, only getting to truly celebrate their birthday once every four years!)

I also had a friend tell me she still gets angry about what has happened, how unfair life can be, why it had to happen to us, and how she should be watching two little kids when she comes over to babysit, not just one.

So many different sentiments that bring comfort in so many ways.

Just kind of a weird day.

Wednesday, February 25, 2009

A beautiful gift at just the right time

My Aunt Sharon does amazing cross-stitch work. We have her work all over our house. She made us a beautiful framed wedding piece with our names and wedding date, and then made a piece for Katelynn when she was born with all her "stats" that I had framed. She had Kristen's all ready before she was born, she was just waiting for the "stats". It was divine that there was enough room for the details she ultimately included. She gave this to me at Kristen's service and I was so touched. I'd been wanting to get it framed through Creative Memories and just barely got it to them in time before they accepted their last order. (CM no longer does Custom Framing.) We're not sure where we'll display this so I wanted to display it here. You can click on it to enlarge it and see the beautiful details. The saying at the bottom I added so it would look like Katelynn's who's has a scripture at the bottom.
Thank you Aunt Sharon, it means so much to me to have such a special gift for each of my girls.

It was actually interesting to get this when I did. I've been going through a "wave" over the last week or so, which took me a bit by surprise. I had been doing so well most of the month of February and got caught off guard by a wave of grief that started over the weekend. I know they will always come and go in varying degrees, and this was just one of many more to come. There had been so much celebrating of Kristen this weekend and getting to tell her story which I enjoyed. However, all the talk of her without getting to also talk about the hard parts took its toll. I don't enjoy talking about it, but am finding I need to find ways to talk about it because grief will always find it's way out, one way or another, and I'd much rather have it be constructive. Tears are cleansing in so many ways and I had been denying them their power, thinking I was getting "better." Little did I know....have you had a good cry lately? :) Give it a try, you might be surprised how good it makes you feel!

Saturday, February 21, 2009

The Big Day!

Today was my special day to go shopping for my grand prize from the radio contest that you all helped me win! We were picked up at 9:30 in a stretch limo and taken up to Bellevue where we were met by a photographer and Matt Case from the radio video taping us! We got to meet another winner and her husband and looked around a bit. We then were introduced to Rex, Marci's owner and he provided us with a small welcome gift: a pair of sterling silver hoop earrings in a little pouch. Matt said a quick prayer and then the caterer welcomed us to enjoy the delicacies. And they were wonderful! Cheese souffle, mini goat cheese tarts, chocolate mousse and chocolate covered strawberries, smoked salmon tarts and fruit parfaits. All accompanied by parkling apple cider!

We each got a personal assistant to help us look around and that's what we did! Rex, the owner, encouraged us to take our time looking but to consider a significant piece, versus a few lesser items. He acknowledged that most things in his store were on the more expensive side so that we should enjoy our prize and choose something that we would treasure for years to come and that would remind of us our love stories. I had thought at first to get a watch but then decided that I wanted something I wouldn't be worried to wear. I didn't think I'd be wearing a $500 watch to the park!! So I then thought of an earring/necklace set. But as I looked, nothing really struck me as "meaningful" and technically I had already been given the earrings! I had a hard time not thinking of quantity over quality, wanting to stretch my prize as best I could, not sure if I wanted to spend my whole certificate on one item. Until......

I went and looked at some of the displays in the window cases and saw the only pearl pendant they had in the whole store. I was interested in something pearl, but not a strand of pearls. It reminded me of Kristen's Christmas ornament and I knew that was it. It is a single pearl on a sterling silver base edged in diamonds. I looked at the price tag and it was 1/2 again more expense than what I had to spend, priced at $1,450. Lori (my personal assistant!) said "let me go check on something" and went to ask Rex what he thought. He came over and said "I can do this two ways, I can change your gift certificate to $1,450 or I can change the price of the necklace to $1,000. How does that sound?" As you can guess, I agreed! The more I looked at it, the more I liked it. I had thought I wanted a pearl pendant, but this one makes me think the pearl is being held, not just dangling there by itself. And if I really wanted to get into "significance", the shape holding it is a triangle, which could represent the Trinity!

As we all had our packages wrapped up we were given a gift from Spirit 105.3 of a T-shirt, a Third Day CD, the DVD "Fireproof" and our Chris Tomlin tickets. Wow! The gifts just kept coming! We all gathered outside for a few photos with our limos and then we were off once again! The three of us winners agreed we should get together before the Chris Tomlin concert which would be fun!







Needless to say it was a very fun day with lots of treats and surprises! Thank you Spirit 105.3 for the opportunity! Thank you Marci Jewelers for the experience and the wonderful gift! Thank you Salon and Spa Dolche for the fun, new hair style! And thank you everyone who voted for our story. It was an honor to honor Kristen in such a way!

Tuesday, February 3, 2009

Momma's got a brand new 'do! (thanks to Spirit 105.3 and Salon & Spa Dolche!)

As a qualifier for the first week of the radio “Love Story” contest I received a gift certificate to Salon and Spa Dolche in Everett. We were going to be talking family photos over the weekend so I decided to make the trek and get my hair done! For those of you not familiar with the area, it meant an hour drive north - but oh so worth it! My friend Shelly took Katelynn for the whole day so I could take my time and not worry about her (thanks Shelly!!). Shelly even gave me a note as I dropped Katelynn off letting me know she remembered it would have been Kristen's 5 month birthday that day and this was a wonderful way for me to celebrate her - with a gift I wouldn't have had if it wasn't for her! Thanks Kristen!

My hairstylist was amazing! She took her time to listen and and then took it from there. I had no idea what I wanted and what I came out with was incredible and really fits me. I am so happy with the color (well, colors, four of them to be exact!) and the cut is really fun and easy to take care of. The whole “treatment” was a bit more than my gift card would cover but she said that since I was the grand prize winner, she wasn’t going to charge me for the haircut. Thanks Kelsie!!!

Before, During and After: