
However, I will say - she did another spot on her hair just the weekend before. It was very minor and I thought "Whew! If she had to "get it out of her system" and that's all the damage that was done, then we're okay!" Little did I know...


Step One: Grate the bar of soap. You only need 1/3 cup for this particular recipe so I just grated the whole bar and it made almost a full 3 cups 

My son Hunter has tetralogy of fallot and just had it repaired on 11/18/2008.So on the days when I am sad and bitter that I only got 64 hours with Kristen, I need to remind myself that any more time than that would have also come with a whole new vocabulary. These kinds of conditions and surgeries are just the way of life for many Trisomy families. Kristen had a number of hard to pronounce conditions herself, many of them I never did ever know, because it was obvious pretty early on that those conditions in and of themselves, weren't really going to matter in the long run. (Although that idiot cardiologist at St. Joe's who tried to explain heart abnormalities to a completely delirious and drugged up Momma sure was proud of himself and his vocabulary!)
Hunter has had a lot of surgeries including cleft palate repair, nissen fundoplication twice, hernia repair, ureter reimplant (kidney), mandibular distraction, mastoid surgery, and before the heart repair he had a right BT shunt.
| 2 | | eggs | 4 |
| 1 | | Chia seed egg substitute: 1 T Chia meal & 3 T of warm water | 1 |
| 2 | Tbsp | flax seed meal, butter substitute: 1 TBS flax meal with 3 TBS warm water | 1 |
| 2 | Tbsp | chia gel (see directions before you start) | 0 |
| 4 | Tbsp | margarine | 8 |
| ½ | cup | packed brown sugar | 12 |
| ¾ | cup | sugar | 16 |
| ¼ | cup | honey | 8 |
| 1 | tsp | vanilla extract | 0 |
| 1 ½ | tsp | light corn syrup | 1 |
| 2 | Tbsp | wheat germ | 1 |
| 1 | Tbsp | dry chia seed | 1 |
| 3 | Tbsp | soy protein powder (from bulk bins at WinCo) | 1 |
| 1 | cup | Protein Plus peanut flour | 12 |
| 2 | tsp | baking soda | 0 |
| 4 ½ | Cups | Quick oats | 19 |
| 4 ½ | Cups | Rolled oats | 19 |
| 3 | oz | mini chocolate chips (from bulk bins at WinCo) | 10 |
| 2 ¾ | oz | Plain M&M's (you can use more if you want, that just what I had left in the bag!) | 10 |
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| Simone holding Alina, Me holding Baby Julia and Baby Ashley, Katelynn and Daddy (so bummed we didn't get Peggy in there!) |
After our visit we decided to take a ferry across the sound for a long, scenic drive home. (and a yummy dinner in Poulsbo!!) It was Katelynn's first ride on a ferry so it was a big adventure!! And it just so happened that our ferry was named the "Spokane" (where I'm from)! We had someone take a photo of us with the sign but he didn't quite get all of us. Oh well. The 2nd photo he took was much better! Katelynn had so much fun out on the boat deck. It was such a beautiful day!
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| just a bit windy!! |
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| my pretty little flower girl! |